Father and son die in sleep after cold symptoms

A heartbroken mother, Amber Selvey, from Seasalter, Whitstable, is raising awareness about Alagille Syndrome after losing her husband Jason, 47, and son Daniel, 24, to the rare genetic disorder. Both died unexpectedly after going to bed with minor illnesses, suffering cardiac arrests related to their condition. Amber, a paediatric nurse and mother of five, is now helping grieving parents through a support group, emphasizing the need for societal acknowledgment of child loss. Alagille Syndrome affects 1 in 30,000 to 70,000 births and often goes unnoticed.

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