Concerns Over HHS Autism Database Initiative
Autism experts voiced concerns after the Department of Health and Human Services, led by Secretary Robert F. Kennedy Jr., announced plans to create a database using Medicare and Medicaid patient data to investigate autism’s root causes. Critics, including Alison Singer of the Autism Science Foundation, worry about patient privacy and the lack of transparency regarding data collection and management, noting that the project does not incorporate input from the autism community and overlooks established genetic links. The initiative follows rising autism rates and aims to examine environmental factors, though it faces skepticism due to Kennedy’s controversial history with autism research.