Parents of babies diagnosed with Spinal Muscular Atrophy (SMA), a life-limiting condition, express frustration over late diagnoses despite early symptoms. Dani-Rae Brown was diagnosed seven months after her first symptom and now relies on a wheelchair, while Lucian Neale showed symptoms in the womb but was diagnosed at six weeks old. SMA can lead to death within two years if untreated. Their concerns follow former Little Mix star Jesy Nelson’s revelation that her premature twins also have SMA and may never walk.
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